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Post by momoferin on Apr 16, 2008 17:04:11 GMT
Hi Everyone! Looking for any information on this syndrome, as our daughter was diagnosed with it at about 7 years old. Its hard to get any information and we are told it is rare, so would appreciate any tidbits of info. Our Erin is 9 now and will be 10 this summer. Seizures and global delays. She is the youngest of 4, a real sweet happy girl. Thank you in advance! LOVE this site!!!
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Post by Momof Brodie on May 29, 2012 19:32:52 GMT
Hey! We have this too! Our son is 6 now youngest of 3 and as you know there is no info really! I am working on a blog this summer that has photos and info from our road with Barraitser-Winter! Would LOVE to chat!
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Post by mom of erin on Aug 30, 2012 0:40:07 GMT
oh my goodness!!! I had given up any hope of finding anyone! Thought I'd look at this message board one more time! How can I get a hold of you?Just send me a message - here's my email jschunk@quixnet.net So looking forward to talking!
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