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Post by heather on Jan 10, 2007 1:50:44 GMT
Hi, my name is heather. i am from st. Louis Missouri. i am a junior in high school and i am doing a paper on lissencephaly, and i was just wondering if anyone out there would mind sharing a story, situation, advice or any information about lissencephaly. there is, as you probably already know, a very small amount of helpful information on the web. i personally am not effected by it, but i am very interested in learning more about it. if you can help, i would really appreciate it. thank you for your time and God bless.
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Post by caroline kelly on Jan 10, 2007 7:24:37 GMT
Hi Heather,
My name is Caroline and i am mummy to D aged 4 and half who has lissencephaly type 1, any help you need just ask honey you can e mail me at cazbar_8@hotmail.com
best wishes
Caroline and Declan xx
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Post by Robinson on Jan 10, 2007 10:35:14 GMT
My name is Stuart and my daughter is 2 years of age and we live in the Uk, need any help feel free to e-mail stuartprobinson@hotmail.com. Emily has Lissencephaly, development delay and an aggressive form of epilepsy.
Good luck with your paper Stuart and Emily
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karen71
New Member
My princess is nearly 20
Posts: 25
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Post by karen71 on Jan 10, 2007 15:20:30 GMT
Hi Heather, How are you ? My daughter is 16 and we live in the uk, we have been through many things and different illness and complications so if there is anything i can help you with for your paper please feel free to get in touch, My e-mail is kaz7190@hotmail.co.uk
All the best with your paper, Karen and Casey x
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Post by janed27 on Feb 6, 2007 11:18:31 GMT
hi heather
My name is Jane I have a 10 year old boy Mitchell with type 1 lissencephaly any help you need emailme on janed27@hotmail.com
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Post by patricia on Jul 4, 2007 15:18:17 GMT
HI, I have a 20 year old lissencephaly affected sonhe has a combination of ILS and MDS He also has other birth defects. I am a retired nurse and would very much like to help with your paper. Please feel free to contact me at any time patricia.evans2142@btinternet.com
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Post by claire on Jul 12, 2007 12:25:07 GMT
Hi heather i have a 6 yr ols daughter imogen who has type 1 ILS. I would be more then happy to help you out. email me at mirror_princess@hotmail.co.uk.
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